The FA App
Power the Cure for Friedreich’s Ataxia
Our mission is to connect and empower FAers worldwide so we can all participate meaningfully in finding a cure for FA. The FA App helps us do that.
ConnectWe need your help with researchConnects FAers with researchers running clinical and virtual research trials which bring us closer to a cure.
UniteBe part of the communityUnites a global community of FAers to participate meaningfully in finding a cure.
EmpowerKeep your own private logbookEmpowers FAers with useful tools for managing their life and treatment.
EducateAs we learn more, you learn moreEducates people about symptoms, diagnosis and treatments, sharing the latest FA news, events, stories and findings.
How does it work?
FAers firstOf all of our users, we aim to empower and enable FAers first.
The FA HubWe aim to bring together all FAers globally, connecting them seamlessly to researchers, and important resources and providers relevant to their needs.
Research focusedWe are driven by the aim to find a cure and will focus everything towards this goal.
For the FA communityOur mission is best served by being universal, so we’re not aligned with any single organization or institution.
Inclusive communityWe strive for an inclusive community which stretches across all geographies, levels of disease progression, and connection points to FA.
Not-for-profitWe are structurally not-for-profit and have no intent to monetize anything or generate profits for anyone, ever. We never intend to fund-raise via The FA App.
Privacy protectionWe recognize that each FA community member has their own journey with FA. Data contribution is voluntary.
Data transparencyWe are open about what data is contributed, how the data is used, and intend to share the outcomes of any published research following the use of The FA App.